The 7 Stages of Fibromyalgia

Angela Wise has expressed her views on the Facebook page “Everything Fibromyalgia” about the different
stages of fibromyalgia. A lot of us have come together on this site and others.. because we all have one thing
in common. FIBROMYALGIA, FIBRO-MY-ALGIA, sometime in our past, recent or further.
We have been told we have fibromyalgia. It is a syndrome in which a person has long-term, body-wide pain
and tenderness in the joints, muscles, tendons, and other soft tissues and BLAH BLAH BLAH you know the
rest. For GODS sake we live it everyday. We are more than a diagnosis, and we should not all be lumped
together as a whole, there should be stages, and this is why
Stage 1
Fibromyalgia should be for those that have recently been finding out that they are experiencing more pain
and fatigue than before, you’re not sure what is going on but you hurt and your tired.. you can still go to
work, you can still make it through your day, but you know something isn’t right. So it’s something you’re
going to bring up at your next routine doctors ( visit.
Stage 2
You are in pain a lot , sometimes taking an Advil or ibuprofen or what have you .. you get a little relief, you
have already been diagnosed with fibromyalgia, and you have accepted the fact this is something you are
going to have to live with, you feel a lot of pain and you are exhausted almost every day…but for the most
part you keep going and hold down a job (, can still go to events,
spend time with your friends ( and
loved ones..and have somewhat of a good time.
Stage 3
You are in constant pain, you are constantly tired, more often than not. You question yourself whether you
will be able to function normally anymore. You are thinking about maybe not working because you no longer
have the energy you once get home from work and all you can do is rest.. friends
( call and you have to turn down the have no energy left and you have to rest up just to go back tomorrow. In this stage you start to
feel more alone..and more and more people are beginning to think you whine an awful lot. And this stage can
last a long time, years even.

August 15, 2017 – By M H Shahid (
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Stage 4
You are in pain all the time, good days are few and far between…your calling into work sick more than you
even make it in…you’re in bed a good portion of your day.. when you do have a good day you take advantage
of it, and do as much as you can, all the things you have left in the past weeks you cram into your day…
knowing tomorrow you will be paying for it..possibly even up to a month..but you do it anyway..
because you finally feel good enough to do
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You have already been let go or have quit your job (, you are asking questions about permanent disability ( and how long it takes.. hoping a majority of people will say 3-6 months tops, but instead
your fearful of the horror stories about everyone being denied and it taking years for are
struggling to make ends meet, maybe you moved someone in to help or moved in with someone to save…you
spend a lot of your day in bed. Although you still take advantage of that one good day once in awhile.
You are sore, very sore.. you cry a lot. You feel like a prisoner in your own skin. By this time you have already
explained to your friends that it still feels good to be invited even if you don’t go..they invite you to a few
things the next week and then things go right back to the usual..laying in bed crying.. feeling alone.. feeling
abandoned.. misunderstood..and you have found that the only people that you can relate to are other people
whom have been diagnosed with fibromyalgia. What a good feeling..not so alone anymore.. and you wish
that your friends and family could see what its really about (, this stage can also last for years.
Stage 6 (The final Stage)-
You may or may not still be waiting on disability, Fibromyalgia is now a way of living, most of your friends
are those living with fibromyalgia themselves, everything you do takes your precious energy..simple daily
tasks you took for granted in earlier stages, going to the bathroom, washing your hair, taking a shower,
getting dressed, tying your shoes..even your everyday jewelry irritates the shit out of your energy or
desire to put on “your face” before going energy to curl or straighten your hair..with all the
medication you are on or have tried, you are dealing with those side effects as well as living with
You now have Netflix or Hulu because going to the movies happens very rarely..very very rarely..and you are
human and still enjoy some normal watching tv… you try to stay current on any news regarding
fibromyalgia, in hopes they are closer to finding a cure… most of your friends are not around anymore.. they
have things to do.. and you? Well.. you need to rest, because you just vacuumed! It’s easy to feel overwhelmed
in this stage, because things are piling up around you… bills, laundry, dishes etc.
You do a little everyday…you push yourself so you don’t feel like your day was wasted in feel guilty..
very know longer pull your own weight in the house..your kids, spouse or family member get
things for you more than ever.. tissues, something cold to drink, meals, blankets etc..they try to do it in a nice
manner but you still feel like a burden…you can’t remember anything.. even important dates.. birthdays,
anniversaries, school events etc…not only can you no longer remember shit..
When you start to say something mid-sentence you’ve forgotten what planet you even live on..let alone what
it was you were going to say…(thank God for the few people that do pay attention and can tell us what we
were talking about to begin with)..
Also you know more about fibromyalgia in this stage then your own doctor and basically laugh when trying
a new medication (…same drill as before.. and
same results.. nothing helps 100%…your not even sure it’s working at all…but you keep going…at this point
you know who really understands and who can care less.. even your so called close family members that
claim to care.. you know the truth..and you show extra love to those that get it..because after all, other than
your fibro friends they are all you have left…
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You may see a stage here you are currently in..some things may not be exact give or take…but I know one
thing for sure.. fibromyalgia isn’t the same for all of us..just because you can work and I can’t doesn’t mean I
wouldn’t love too, or I am lazy.. it could simply mean I am in a different stage than you are..which is most
likely the case..It’s not fair to assume you are better or can handle more pain because you still have a social
life.. our hearts ache with pain that fibromyalgia has stolen that from us.. we want it back so bad..
We live for our good days, and we support each other through the bad..please do not judge others before
knowing their journey…it’s not your responsibility to decide what stage someone else is in..we are fighting
the same battle.. we all want the same cure..we need to try to stay positive to help others through the bad
days, so they will return the favor when we have our bad goes a long way.. don’t be afraid to love
someone with fibromyalgia..we have some of the biggest hearts.. because we of all people know exactly what
it’s like to be misunderstood… However I think Stage 7 could be –
Stage 7: Acceptance
When we finally receive a definitive diagnosis we are filled with fear, sadness, anger, and many other
feelings, including relief. Someone has finally given us an answer for why we feel the way we do! Once we
learn to accept this, and learn our new normal, we can learn how to adapt to this new life.
There is no set amount of time it takes to learn this acceptance piece, but once we are there, we can start
moving forward and learning how this new life will go, accept our “new normal” and begin again.
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